Waiting to die

I've had a rough couple of days.  The good news is that I have an appointment with my psychiatrist on the 16th.  The bad news is that it is on the 16th, which seems like a lifetime away. 

I have no idea what "normal" is in life.  My life is not normal.  Other people are able to drive places, work, shop, clean, read a book, listen to conversation, take showers, laugh, love, feel - I am unable to do those things.  I want to do those things, and try very, very hard, but I just can't. 

It is impossible to accurately describe the difficulties that I am experiencing, because I honestly have no idea what is possible or normal.  My brain fails me.  I used to do so many things.  I was capable of great things.  Now I avoid causing myself any pain by staying in my home.  I rarely go out.  If I do, there are issues, and those issues are getting harder and harder to overcome so I've stopped testing the waters.  I very quickly move from one mood to the next and have lost the ability to "snap out of it" or respond to assistance from my husband to either calm down or climb out of a deep depression.

I want to be angry about this.  I want to be sad.  I have no feelings.  I have no life.  I serve no purpose.  I am of no use to myself or anyone else like this.

My day:

Wake up.  Breakfast.  Prednisone (still dealing with the Lamictal Rash).  Check email (if I can - fear of the unknown causes me great anxiety). 

And then I sit.  And sit.  And sit.  Sometimes I fall asleep, but mostly I just sit and think about how much I hate myself.  I do not watch television because it moves too fast for me.  Conversation makes me very angry.  I do not clean the house or shower or brush my teeth.  I have some facial wipes that I will use if I remember, perhaps once or twice a week before or after bed. 

I'll have some lunch.  If the dog has to go out I see if someone else in the house will put her out.  I'll do it if I have to.  I hate looking outside. 

If the dog barks, I freak out.  If a car drives by, my heart jumps.  If I receive bad news I will cry and want to end my life.  If something good happens, I feel nothing. 

I only go to the restroom if it is an emergency.  I spend my days frozen in place.  It is mentally and physically painful to do more than that. 

My therapist says that I am not lazy.  I argued with her, but she's right - I'm not.  There are so many things that I desperately want to do - take a walk, clean my closet, fold some towels, make a phone call - but those things cause me actual pain. 

I have been like this for years.  Back when I was working, I had to make a choice - do I shower?  If I shower I will have a hard time driving to work.  When I get to work I will have to find the ability to work.  Most days I just sat there and quietly cut my skin.  I would do a couple of things (type a letter, draft a document) but that was it.  When I got home I would hit the chair and dig my skin until I fell asleep.  I usually woke up the next morning in the same spot, wearing the same clothes.  If I'd showered the day before I would just change my shirt and brush my hair before heading out the door for another day at the office.  Near the end of my employment it was common for me to go for 4 days without showering. 

Right now I only shower if I have an appointment with my therapist.  I usually go at least 5 days in a row without a shower. 

My therapy appointments are scheduled on dates and at times when my husband is off work so that I have a ride.  I do drive on occasion (to buy a breakfast sandwich or go to the market), but I should not drive.  I stay within a 4 mile radius of home so it feels relatively safe, but it is not safe.  My brain has a very hard time keeping up with the speed of driving.  I used to zoom my ass down the street like a maniac.

The zoom is long gone but the maniac remains. 

I want to take care of myself.  In my mind I do not deserve a walk or nutritious meals.  Those are reserved for people who earn a living.  I am not working and should not be spending work hours (8:00 a.m. - 5:00 p.m.) doing anything but sitting and thinking about what I should and would be doing if I had a job.   

This is not a life.  I do not have the tools to figure out how to live my life.  At this point, I have not found anyone else who knows how to help me.  Several medications have failed.  I suffered a horrible reaction to one of them, and the other two contributed to a 40+ pound weight gain in a few short weeks. 

I've lost everything.  I don't know how to make this right.  I'm just waiting to die because this is no way to live. 


 

On my own...again

All of my appointments have been cancelled.  I have no therapy, psych nurse practitioner or psychiatrist/med management appointments at all.  I am on my own...again.  We've come full circle.  It's hard to avoid feeling down right now.  I thought someone had discovered the elusive answers to the issues that have consumed my life.  I thought that things would get better from that point forward.  There would be hard work, but I was willing to do that work - to put forth an honest effort to invest in my health, something I have been unable to do until now because I simply did not know where to begin...what was wrong...how to fix it.  I was told that it would "get better from here." I put faith and complete trust in that statement.  I believed that statement with every cell in my misfit body.  I had hope. 

Everything happened all at once back in April.  All of the balls that I had flying in the air came crashing down.  I was up and down and up and down and down and...down.  I wanted to die.  I wanted to live.  I wanted to squeeze the shit out of life with my fabulous plans...fabulous plans that I could not make happen because my mind was a jumble of bits and pieces and nothing fit.  Nothing made sense.

I fell into the deepest and most frightening despair of my life.  Self harm was almost constant.  I would cut my stomach with scissors under my desk at work (usually while my boss was grilling me), claw at my body at home, in the car, while I was sleeping.  When I saw blood, I felt better.  Contrary to what most people say about self-harm being a release and a cry for help - it was more; I wanted to die.  I made plans to die.  I was going to take my life.  The living world had lost its pull on my heart and all that was left was my mind.  My mind was saying yes to the end.  It felt right to finish the journey.  People would be better off without my negative energy in their lives.  They would go on.  Be better.  Do better.  Learn from my illnesses.  I had to give myself permission to stop trying so fucking hard to be well.  I gave myself permission to stop pretending. 

It happened all at once. 

After letting the mask fall, I told my husband that I had to leave.  I wasn't going to, but after 20+ years of marriage I was not going to leave him with a letter.  I was not going to leave this world without saying goodbye to my one true friend.  He did not ask me to stay, but he did beg me to wait.  He stopped everything and asked that I join him in a discussion with our family doctor.  I agreed and we saw him the next morning.  Our family doctor referred me to a therapist and psych nurse practitioner.  After some discussion and many tests, they diagnosed me with several disorders and started therapy and medicine.  I had hope, I think.  I certainly had something.  It gave me a moment to focus on myself - perhaps to stay alive and see if I could salvage the second half of my life.  Perhaps find joy.  No, not even joy.  I desperately wanted PEACE in my heart and mind.

The answer quickly turned sour and became a problem.  Another problem.  Another thing to endure and survive.  I tried.  I FUCKING TRIED, but the cure was just another cross to bear, and my weary shoulders had long since worn out.  I gained a massive amount of weight, pissed my pants, drooled, and started to loathe the very sight of my ever-expanding, hideous body.  This was not the answer.

I discussed my issues with Lithium and Risperidone at every appointment, but my concerns fell on deaf ears.  I felt like a prisoner to another problem.  It was my problem - they gave it to me and expected me to make it work.

That did not work.  I spoke and no one listened.  I became the patient.  The mental patient.  I was not a partner in my own care - my opinion did not matter.  I had no say - no control.  The people charged with my care - my life - would just ignore my questions and carry on as though they were never asked.  I would ask again, and the conversation would continue.  I was invisible.  My input did not matter on this train.   

In the meantime, I had a career and responsibilities.  I have a husband and children.  I have a home.  I have an extended family.  There were life events - graduations, college, new responsibilites, injuries, demands, bills...

It happened all at once.

My boss, who had abused me for years (and I permitted it because I needed that job), layed the final straw on the trembling pile when he demanded that I cancel two medical appointments and tell personnel why I had those appointments.  I made the decision to leave my job of almost 11 years.  In doing so, I knew that I would leave that career forever.  I'd lost my edge many years ago and it was time.

It happened all at once.

I wanted to die, attempted to die, left my job, received shitty care, was twice almost involuntarily committed, agreed to a forced intensive outpatient program that nearly killed me, gained 45 pounds, and lost every last regular contact with coworkers, colleagues and clients.  I lost control, my self-respect...I lost nearly everything.

I'm right back where I started, only now I have nothing, save my husband.  I have less than nothing because my care up to this point has cost me thousands of precious dollars and did nothing but make things worse.  I am obese.  I am battling serious adverse effects of Lamictal.  The children (3) will soon be off (one is already) to colleges and careers.  We have to sell the house.  Life is forever altered because I dared to ask for help. 

I am exhausted.  There is nothing left under my burned skin.  I feel a small twinge of life deep inside, but those have let me down before.  The plan going forward is quite simple:  set goals, do my best, focus on what I have accomplished and not what is left undone at the end of the day.  If I run off the rails, I will seek help.  "Help" has been very unkind to me, but the twinge is telling me that I should keep trying.  Is this good?  No, no this is not good.  This is a dangerous time.  I know that.  My family knows that.  We tried.  I tried.  That twinge is all I have and I pray that it is enough to carry me through to the next source of help and hope, if there is such a thing. 

It's all me.  The scary part is that I have no idea who the hell "me" is.   

   

Therapy

Before I begin I think it is important to note that these posts are very difficult for me to write.  I force myself to power through because it is important that I document these days as I search for balance in my life. 

The posts are difficult in that I am forced to read and re-read them over and over again.  When I read, I click my teeth once for each word on the page.  If I lose my place or train of thought, I have to start over from the beginning.  I usually write these posts in a very short period of time, all at once, and then read them over and over again, clicking my teeth or tapping my face, and then hit send -- never changing a thing from the original post. 

This is just one part of the whole messed up picture.  Still - I work, love, live, do.  I persevere.       

I love my therapist.  She is intelligent, funny, respected among her peers, and has been doing this work for over 30 years.  She knows her stuff and it shows.  I feel safe in her presence.  She focuses on results and that is something I appreciate.

I did most of the talking today (don't I always?).  Today she said, "I have to remind myself why we are here because, as a general rule, bipolar people are very entertaining. You are no exception."

Among other things we confirmed some of my diagnoses (after consult with the psych doc), and it is a considerable list: 

Bipolar disorder - rapid cycling
Anxiety disorder, to include hypersensitivity to sound and self harm
Panic disorder
OCD (obsessive compulsive disorder)
Impulse control disorder, to include neurotic excoriation
Binge eating disorder
PTSD (mild)

There is more, but the issues fall under one or more of the above-listed disorders.  We have a lot of work to do.

We discussed my apprehension regarding Lithium, and she made it very clear that it was worth trying, so I will - starting Tuesday - after my next therapy/psych appointments.  I need to have an EKG before we begin Lithium therapy (I completed all of the blood work, etc.), but finding the time to get this done is difficult in my busy life.  Tomorrow is the day.

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